It is SO nice to be back at home! All of us feel so much better just being together in one house again.
Olivia was able to come home this past Monday. We hit the house around 5 pm and it's been a whirlwind around here. We've had two visits at home from a nurse and one visit out to her pediatrician. I love her pediatrician - he's got a well child entrance that is separate from the sick child entrance and waiting area. We were able to go when no one else was in the office so she was not exposed to anything. He spent an hour and a half with us learning about her and looking at her. I was very impressed. He used to work in the same hospital we just left, and is still remembered by the staff that works there with an enormous amount of respect. We have two more nursing visits at home and one more doctor visit between now and next Wednesday - hopefully it will dwindle down after that.
I know our updates have been spotty and they might continue to be so for a while. But to pull it all together with everything she went through, I thought I would list some of the things put on her "unofficial" discharge diagnoses. This is a short synopsis of what she has been through the past two plus months. Lots of medical terminology; hope it makes sense. While I lived through it with her, I'm not exactly sure what some of these are in plain English - I'm just copying off the paper. We have a few more appointments coming up that might add some information to this - hopefully not!
Former preterm infant now 42 4/7 weeks PMA
RDS (resolved)
Left Pneumothorax (resolved)
Respiratory Acidosis (resolved)
Seizures
Anemia
Pneumopericardium (resolved)
Bigeminy
Grade 2 IVH bilaterally (brain bleed)
NEC
Pneumoperitoneum (resolved)
Hypotension (resolved)
Coagulopathy (resolved)
Thrombocytopenia (resolved)
Bowel perforation s/p illeostomy placement
BPD
hypotonia
Bowel reanastamosis
G-tube placement
Gastroesophageal reflux
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7 comments:
Yay! So glad she is finally home! That is a pretty overwhelming list. Hope the transition to being at home goes well for the whole family. Looking forward to more updates and some PICTURES!
Like Aunt Mandy said,
YAY! Olivia (and the rest of you!) have been in my prayers, and I'm glad to hear she's well enough to be at home. Also, sounds like you really hit gold with your pediatrician.
I'll keep you guys in my thoughts and prayers! Keep us updated!
Oh i needed to read such a happy moment today. You have my number if you need anything let me know
Thank goodness! I'm glad your family is under one roof - praying for continued progress and a state of "normalness" for you all too!
~Sarah
So glad that she is home safe with y'all. Praying for a steady road to recovery for her!
Laurie, I believe god has worked miracles with Olivia and will continue to work more. I am glad you are all home now.
Yay!! Yay!!! YAY!!!! So excited for you guys!! YAY!!!!!!!
Let me know if you need anything.
Hugs to the all the family!!
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